Hes been able to walk in and out of school, in and out of the hospital, which is not something that many 15-year-olds with Duchenne muscular dystrophy are able to do, said Terri Ellsworth, Billys mother.
Date: Sep 23, 2016
Category: Health
Source: Google
FDA grants accelerated approval to controversial muscular dystrophy drug
The news was cheered by parents and advocates, including Terri Ellsworth, whose said she was stunned, happy and relieved. Her 15-year-old son, Billy, has been participating in a clinical trial for the drug and hadn't heard the news before he left for school. She planned to visit him later today to s
Minutes after the advisory panel adjourned on Monday night, Woodcock met with some of the DMD boys and their families. Terri Ellsworth posted a picture of a smiling Woodcock standing next to her son, Billy, on her Facebook page.
Date: Apr 28, 2016
Category: Business
Source: Google
To sway drug approval, patient advocates turn up the heat on the FDA
Were not asking for something thats not worthy or didnt prove itself; were asking for flexibility for a rare disease, Terri Ellsworth said. My son gets himself to bed, gets himself out of bed every morning, dresses himself ... eats breakfast and carries his dishes to the sink. Most boys are
Terri Ellsworth says she believes her 15-year-old son with Duchenne has benefited from Sareptas drug while participating in the companys small clinical trial. She says she was shocked to read the negative tone of the FDA briefing documents, which she says contain inaccuracies about the drugs effi
Date: Jan 20, 2016
Category: Health
Source: Google
Youtube
Perron Institute - interview with Billy and T...
Perron Institute Director Professor Steve Wilton hosts Billy Ellsworth...
Duration:
6m 48s
Muscle Owl Talks Ep95: Terri and Billy Ellswo...
Watch our latest episode of Muscle Owl Talks, as we speak with young B...
Duration:
18m 45s
Billy's thank you to Dr. Woodcock
9-20-16.
Duration:
19s
Billy completing 100m walk during Columbus MD...
11-6-19 100m walk.
Duration:
2m 14s
Beginning 12th year on #Exondys51
Billy with #duchenne muscular dystrophy, 21 1/2 years old, beginning h...
Terri Ellsworth (Terri Works Too Many Hours For 2 Little Dollars!!)'s profile on Myspace, the leading social entertainment destination powered by the ...
Terri Ellsworth 1972 graduate of Council High School in Council, ID is on Memory Lane. Get caught up with Terri and other high school alumni from Council ...
Terri Ellsworth (1970-1974), Kim Sorrels (1999-2003), Ben Welch (2007-2011), Stuart Graham (1976-1980), Marc Freeman (1992-1996), Billy Davis (1966-1970)